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Boy with neurofibromatosis brain tumour defies the odds

(Reprinted from the Standard Freeholder, Ontario, Cananda) Boy with brain tumour defies the odds Trevor Pritchard Local News – Saturday, May 26, 2007 @ 08:00 On the rare occasions he’s not giggling or...

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Rodeo Night With Martina McBride

Tonight was another great night at the Houston Livestock Show and Rodeo! I started out with the live stock show and all of the other fun things. Oh, my God! Did I enjoy the FOOD. Everything was to die...

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Clay Walker at the Houston Livestock Show and Rodeo, 3/14/08

Wow! Tonight I was invited to the Rodeo once again. It was a more then Terrific night. The music was the best I’ve heard so far. Clay Walker sang all of my favorite songs and encouraged everyone to...

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NF Lobbyist in Washington needs our help!

Here is a link to past your draft letter DRAFT Senate Support Letter Dear friends, I received this support letter template via email from our neurofibromatosis lobbyist in Washington, D.C. She asks...

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12th Carolyn Farb Lecture in Neurofibromatosis – Monday, June 14 – MD...

12th Carolyn Farb Lecture in Neurofibromatosis Whats new in Neurofibromatosis? Of mice and men: Mouse models of NF-1 and human clinical trials Kathryn North M.D., F.R.A.C.P. Douglas Burrows Professor...

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